She can't spell it, she can barely say it and up until two years ago, she did not even know it existed.
But now, it is the most important cause on Jackie Starr's mind.
Ever since her great-niece was diagnosed with 'rhizomelic chondrodysplasia punctata' - or RHIZO, for short - the Junee woman has devoted herself to raising funds and awareness.
An incredibly rare form of dwarfism, Ms Starr's great-niece Posie Ryan is one of only three children in Australia who have been diagnosed with the disease. Only 75 children have it worldwide.
"When you think of the what the odds of knowing someone with it must be, it blows your mind," Ms Starr said.
"I'm one of 17 kids, my mum has hundreds of grandchildren and great-grandchildren and here's this special little one in there. What are the odds."
Majority of two-year-old Posie's life has been spent in hospitals around Sydney and her home in Port Macquarie.
She has had operations to alleviate intense pain in her shortened limbs, and surgery on her eyes to remove cataracts.
She is prone to seizures, fed intravenously and even just the slightest cold could prove fatal.
But what stands as completely incomprehensible to Ms Starr and Posie's family is that, at just two years old she has almost lived half her life expectancy.
"It's rare and it's terminal," Ms Starr said.
"Most of these kids don't live past five years old and she'll always stay the size of an infant. She's two, but she's still the size of a three-month-old."
Even amidst the stark tragedy of her little life, Posie sparks joy.
"She may never walk or talk or feed herself, but it's the most remarkable thing, she's always laughing," Ms Starr said.
"It's so incredible actually she has said 'mum', and her pediatrician just couldn't believe it. We had to video it to believe it."
Her condition has taken claimed a sizable emotional and physical toll on the family, with her mother giving up work to become her full time carer.
"I spoke with my niece and she told me, the other night, she got her to bad at 11pm and then she was back up at 5am," Ms Starr said.
It has made leading a normal life a difficulty for her brother, Parker, who is now aged four.
"He loves her, just dotes on her absolutely, such a champion," Ms Starr said.
"But it's hard with him in preschool, everyone knows how much kids get sick at preschool.
"There's a chance she will not recover from any sickness she gets.
"We all have to make sure we're healthy and have all our shots up-to-date when we go to see her."
For the past two years, Ms Starr has taken the RHIZOKids Challenge in June.
This year, she and her ukulele troupe performed in the main streets of Wagga and Junee for one hundred hours over two weeks.
Coupled with the generosity of local businesses and community groups, they managed to raise nearly $2000 for research into the condition.
"Nobody knows about it, I speak with people and they have no idea," Ms Starr said.
"Until she was born, we didn't know either.
"The money, the research, it's all important to find out why or how she ended up with it.
"But it's just as important to tell people that it exists."